Rheumatic Disease Awareness Month (RDAM) is officially here and we are excited to share everything going on this September, as well as ways you can get involved!
Our theme this year is “My disease may be invisible, but I’m not” and we’re excited to share real stories and new data on what it is like to live with a rheumatic disease.
Meet our 2020 Patient Spokespeople!
Meet Kim, Chandler and Jill, our RDAM spokespeople! Throughout the month, they will be sharing what it was like to be diagnosed, the impact of their disease on day-to-day life and what it means to live with an “invisible” disease:
Kim, Chandler and Jill, through their various experiences with rheumatic disease, are helping to raise awareness about what it is like to live with a disease that can sometimes feel invisible.
Are you inspired to tell your story and help us raise awareness of rheumatic disease? Here are some easy ways you can get started:
- Visit our Tell Your Story page and submit a video, photo or written testimonial about your experience with rheumatic disease.
- Share our introduction video on social media using #RDAM.
- Tell your own story on social media using #RDAM.
- Advocate for care and the broader rheumatology community by participating in one of our campaigns at the Simple Tasks legislative action center.
By telling your story this month, you are playing an important role in advancing awareness and helping policymakers understand the lifestyle and healthcare challenges patients can face. You’ll also be entered for a chance to win a $100 Visa gift card, as a token of our appreciation!
National Patient Survey – The Results Are In!
Be sure to also check out the results of our new national patient survey of more than 1,100 Americans living with rheumatic disease. The results build on the ACR’s 2019 National Patient Survey and provide new insights and better understanding of the quality of life issues associated with these diseases and how these issues have changed over time. Overall, the results make it clear that Americans with rheumatic disease – regardless of gender, age or income – struggle with the invisibility of their disease and to access affordable care that can improve their quality of life.
Remember, together we are stronger, and our stories are powerful.