Many who live with lupus are already adept at understanding the unpredictability of life. However, during these very challenging times, you may find yourself juggling even more unexpected issues. Since many things are not in your control, it helps to shift your focus to those things that you can control. You play an important role in your treatment and taking steps to self-manage lupus along with your healthcare team is vital.
These resources provide additional support so that you can learn what you need to know to make good decisions for your own health. Remember, you are the captain of your ship and your healthcare team is here to help you navigate your way!
What is self-management?
The American College of Rheumatology (ACR) defines self-management as a person’s continuous engagement in his/her healthcare to understand the illness, participate in the determination of a treatment plan, understand and adhere to the treatment plan, and feel empowered to discuss ongoing symptoms and challenges with their healthcare team.
Where can I learn more about lupus self-management?
For opportunities to improve or gain self-management skills, visit the newly redesigned self-management site from The Lupus Initiative to see our new informational videos and to learn more about these topics:
- Managing your Physical Symptoms
- Medication Decision Making
- Effective Communication with Healthcare Providers
- Lifestyle Management
The Lupus Initiative is a great resource for advice from people living with lupus or lupus nephritis, and doctors (like me) who treat people with lupus!
Always remember your healthcare team is your first resource and these additional tools are intended to supplement this care and help you to live a healthy life with lupus.
If you find these resources to be helpful, or if you have any suggestions for additional information that you would like to see, we would love to hear from you! Please send us your feedback.
Visit lupusinitiative.org to access additional lupus educational resources for providers, educators, students, and people living with lupus.
Kelly Weselman, MD, FACR, FACP, RMSK, RhMSUS is a rheumatologist with the WellStar Health System in Atlanta and fellow of the American College of Rheumatology where she currently serves as Board Member-At-Large and Chair of the COVID Practice/Advocacy Task Force. Dr. Weselman is also a member of the Georgia Society of Rheumatology, American College of Physicians and American Medical Association.