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Case Studies 2017-03-29T15:00:23+00:00

Life with Rheumatic Disease

The Simple Tasks campaign aims to educate rheumatology patients about policy issues impacting their care and encourage patients to advocate for healthcare policies that promote safe, effective, affordable, and accessible rheumatology care.

If you’re wondering what it’s like to live with a rheumatic disease, we invite you to explore these rheumatoid arthritis case studies and other case studies focusing on what it’s like to live with rheumatic diseases.

 

Lauren Lee Johnson

Lauren Lee Johnson

Lauren was 31-years old when she was officially diagnosed with lupus after 10 years of misunderstood symptoms. Two years later, Lauren received her second diagnosis of fibromyalgia. As a thriving professional, wife and mother to a beautiful 11-year-old daughter, Lauren fights to manage her symptoms each day and embrace moments of joy amid the pain. See Lauren’s Case Study >

 

Richard Chrz

Richard Chrz

Richard went from running 100-mile races to periodically collapsing and not being able to stand in his own home. At 37 years old, Richard was diagnosed with systemic lupus by his local rheumatologist, who – in Richard’s book – “wears a cape. He’s truly my hero.” And not only is Richard thankful for his relationship with his rheumatologist, he is grateful for the accessibility to rheumatologists within his community – an issue that many people face who live in areas where there is a deficit in the field. See Richard’s Case Study >

 

Glen Massie

Glen Massie

On the surface, Glen Massie is a 48-year-old man who is happily married with two kids. He works as a transportation planner with the local Metropolitan Planning Organization, and his “free” time is spent giving back. In big ways. From his active membership in the Marine Corps League, to his participation in a local bluegrass group, to his involvement in fundraising efforts for the Vasculitis Foundation, Glen’s thumbprint on the community is hard to miss. And he also volunteers his time as a clown, making others laugh. See Glen’s Case Study >

 

Tierra 2

Tierra Springer

Two weeks before her 16th birthday Tierra was diagnosed with systemic scleroderma – a disease of which she knew nothing. Tierra researched her diagnosis and was lucky to immediately connect with a rheumatologist, providing the opportunity to ask questions and learn. Several years later Tierra has a deeper understanding of her diagnosis, thanks in large part to the relationship she’s built with her rheumatologist, whom she calls a true partner. Tierra shares her story to offer support and help other patients find their voice. See Teirra’s Case Study >

 

Christine Schwab RA case study

Christine Schwab

As a young, successful, fashion and beauty correspondent, Christine Schwab was shocked to hear she had rheumatoid arthritis at the age of 43. Christine was shocked at the diagnosis because she had always believed ‘arthritis’ to only strike elderly people, a perception she would later work hard to change. And, through her struggles, Christine has found her window of opportunity by working with a rheumatologist and becoming a rheumatology advocate. See Christine’s Case Study >

 

Katie Emmerson RA case study

Katie Emmerson

At the age of eight, Katie Emmerson was diagnosed with polyarticular juvenile arthritis during surgery to remove a tumor from her wrist. By the age of 12, her arthritis left her in a wheelchair. Now, at 27, Katie sees everyday tasks as major battles and triumphs. And, Katie has found her window of opportunity by encouraging others with rheumatic diseases to see a rheumatologist early. See Katie’s Case Study >

 

Michael Taffe RA case study

Michael Taffe

Diagnosed with both rheumatoid arthritis and lupus at 50, Michael Taffe found the simple tasks of opening medicine bottles, holding a coffee mug, and working impossible. But, he also found his window of opportunity. See Michael’s Case Study >

 
 

Rogers Family RA case study

Rogers Family

Maya Rogers was a normal eight-year-old child until her family noticed subtle symptoms that led to a diagnosis of juvenile arthritis. Limited access to a rheumatologist and financial and insurance restrictions forced the entire Rogers family to make tough decisions for the health of Maya. With the help of a rheumatologist and Maya’s positive attitude, the family found their window of opportunity. See the Rogers family Case Study >

 

Shanelle Gabriel RA case study

Shanelle Gabriel

As an active, vibrant 18 year old, Shanelle Gabriel’s life was changed when a series of seemingly random symptoms led to a diagnosis of lupus. While lupus has robbed Shanelle of her ability to dance competitively, she has found her window of opportunity to through appropriate treatment by a rheumatologist and by using her disease to inspire new art in her life. See Shanelle’s Case Study >

 

Ashley Boynes Shuck

Ashley Boynes-Shuck

Diagnosed with juvenile idiopathic arthritis at 10, Ashley Boynes-Shuck found the simple tasks of playing softball and brushing her teeth impossible. But, she also found her window of opportunity. See Ashley’s Case Study >

 
 

Alexa Sutherland

Alexa Sutherland

She was 15-months old when she was officially diagnosed with juvenile idiopathic arthritis. Despite her everyday struggles, Alexa has a glowing spirit and a positive outlook on life, with big hopes for the future. Alexa, by many definitions, is lucky because she was diagnosed early – within the window of opportunity. See Alexa’s Case Study >

 

Seth Nixon RA case study

Seth Nixon

He was an active 19-year-old when he was diagnosed with gout. Like many, before his diagnosis Seth had no idea what rheumatic disease was. But he found his window of opportunity. See Seth’s Case Study >

 
 

Leslie M case study

Leslie M.

Leslie M. was 19-years old when she was diagnosed with rheumatoid arthritis and 26-years old when she was diagnosed with undifferentiated connective tissue disease (UCTD). Now 28-years old, Leslie seeks to educate other young women on the unexpected impact of rheumatic diseases. See Leslie’s Case Study >